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Breathing Room has lots in store
for the year. If you would like to share your personal
stories, news items or poetry with us, please contact:
us at: info at thebreathingroom.org.
Stories, Poems
and opinions of participants are their own, and not necessarily
those of the Breathing Room organization.
Please visit
cfmessageboard.com to connect with members of the CF
community online.
Breathing Room facilitates candid and open
communication between adults with Cystic Fibrosis,
supports the development of a community of adults with CF
and provides education and insight for families, caregivers,
and medical professionals who impact our lives.
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A Sense of Service Continued
Melissa
My sense of service is because of three reasons.
First, I never had anyone to connect too about my CF. I felt totally alone
my whole life. I didn't realize how much my 'loneliness' had to do with my
CF, and not having anyone to connect to. I would love to have the honor to
help someone, even if it is only one person, not feel alone.
Second, when I was waiting for my transplant, I had no idea in the world
what to expect. I was afraid to ask questions, afraid of what I would find
out. The doctors were very vague about what to expect. I met a wonderful
woman named Tina Williams, that told me exactly what to expect. She let me
ask every question I had, down to what should I do with my hair. She was
amazing and I don't think I would have been able to handle the wait without
her. I owe her more than she knows.
Lastly, I do it for my donors. They went into surgery and gave me part of
their body just to help me. They did not have to, and could have easily not
have offered, but they did and I am still alive almost four years later. I
do this to give back in the only way I know how. I want them to be proud of
me, and this is one way I know they will be.
Melissa Thompson (Reta)
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