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Breathing Room has lots in store
for the year. If you would like to share your personal
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us at: info at thebreathingroom.org.
Stories, Poems
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those of the Breathing Room organization.
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Breathing Room
facilitates candid and open
communication between adults with Cystic Fibrosis,
supports the development of a community of adults with CF
and provides education and insight for families, caregivers,
and medical professionals who impact our lives.
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Living With CF Continued
As I have gotten older, there have been additional diagnoses made, and those
have been handled with as much grace as possible. Osteopenia. Allergies.
Impaired glucose tolerance. Cepacia. Sinusitis. Obsessive compulsive
disorder. Each time something new is discovered, we (my family, husband and
I) initially suck in a breath of air to brace ourselves for what these
things mean. We have learned to plan for the worst but hope for the best.
Throughout everything we have faced, we have learned that we don't need to
be afraid of CF.
I'm not dying from CF-I'm living with it. And not just living. I'm thriving.
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