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| The Book is Coming! |
Breathing Room has lots in store
for the year. If you would like to share your personal
stories, news items or poetry with us, please contact:
us at: info at thebreathingroom.org.
Stories, Poems
and opinions of participants are their own, and not necessarily
those of the Breathing Room organization.
Please visit
cfmessageboard.com to connect with members of the CF
community online.
Breathing Room
facilitates candid and open
communication between adults with Cystic Fibrosis,
supports the development of a community of adults with CF
and provides education and insight for families, caregivers,
and medical professionals who impact our lives.
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Looking Back
By Diana Compton
“Looking Back”
Creating our newest project, the Breathing Room book, has given us the opportunity to reflect on
the value that “Through the Looking Glass – Images of Adults with Cystic Fibrosis” has brought
to the cystic fibrosis community and the impact taking part in the project has had on participants.
Here we share the thoughts of some of our contributors through the following quotes:
“I viewed the first photographs from “Through the Looking Glass” with awe and
disbelief: disbelief in reading words and seeing images that so closely described
my own life. I aspired to join the project.” Robyn Petras
“I feel incredibly fortunate to have such a strong sense of belonging with my CF
and transplant peers. I’m thankful that Breathing Room fosters this sense of
community.” Isabel Stenzel Byrnes
“I love knowing that people out there, who don't know much about CF except for
what they read, are looking at our image and seeing a different side of people
with CF.” Kaeti Pierce
“I was convinced to not only attend CFRI events but to participate in her photo
project with Breathing Room. I saw her project as a searing example of what
had been missing from the prevailing CF community mentality: the emotional
experience of those of us who have the illness.” Todd G.
“To me, Breathing Room is an extremely powerful way for people with CF and
their caregivers to express themselves.” Alex Jenkins
 
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