Home
News and Info
Looking Glass
Caregiver Stories
Stories
Poetry
Contributors
Resources
Contact

Join our newsletter list!
Enter your email address:




to donate to Breathing Room

Breathing Room has lots in store for the year. If you would like to share your personal stories, news items or poetry with us, please contact: us at: info at thebreathingroom.org.

Stories, Poems and opinions of participants are their own, and not necessarily those of the Breathing Room organization.


Please visit cfmessageboard.com to connect with members of the CF community online.




Breathing Room
facilitates candid and open communication between adults with Cystic Fibrosis, supports the development of a community of adults with CF and provides education and insight for families, caregivers, and medical professionals who impact our lives.

I Remember Well Continued

Unfortunately, my enthusiasm soon waned when I consulted my doctor about some changes in my sputum culture. After several anxious weeks of trying to confirm the lab results, I had to let everyone know I would not be able to attend our Houston conference. I would also be excluded from the CFRI conference and retreat – or any other CF event where cross-infection was a concern.

I had known or read about others who were affected by cross infection rules. I noticed that anger was a common reaction. It is normal to feel angry when one is excluded from a group, even if it is for a good reason. Nonetheless, anger was not what I experienced. Instead I felt sad and anxious. I was sad because I knew I wouldn’t be able to see any of my friends and because I was going to miss out on a fun, enriching conference. I felt anxious because I did not know how others would react after hearing the news. Luckily, no one treated me badly or made me feel like “typhoid Mary.” I am grateful for that.

Two years later, I remain committed to the USACFA conferences. And, I am still sad that I cannot attend. One of the things I was really looking forward to when I stopped working was having the time to go to the CFRI retreat, going to conferences and increasing my involvement in the world of CF. Even though my hopes for greater involvement were curtailed by my new status, I do not regret attending CF conferences at all. I could have picked up my “bad bugs” anywhere. The fellowship and learning were well worth the risk, which, to me, seems minimal.
< Prev  | Next >
Index



All contents (c) Copyright 2003 thebreathingroom.org. All Rights Reserved.