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Breathing Room
facilitates candid and open communication between adults with Cystic Fibrosis, supports the development of a community of adults with CF and provides education and insight for families, caregivers, and medical professionals who impact our lives.

I Remember Well

By Catharine Martinet

I remember well the first time I attended a CF conference. I had several days between jobs, and I decided to overcome my shyness and drive up to Palo Alto for the 1994 CFRI conference. Until then, I had never been around a large group of adults who had CF. At first I didn’t feel comfortable because everyone seemed to know each other, so that left me wandering around feeling lonely and left out. Luckily, I met one of the friendliest people in the world a short while later and she made me feel completely at ease. After the conference was over, I departed feeling overwhelmed, but in a positive mood. It was affirming to get together with other people who had similar struggles and triumphs. I also learned more about the scientific and medical aspects of CF, and that is always good.

Since then, I have always looked forward to CF conferences. Every time I have attended there have been new people to meet. Some of them express the same feelings of overwhelming affirmation that I had felt. As a group we give each other support and encouragement as we face our trials and we revel in our triumphs and accomplishments. Not only that, it is just nice to be around other people who are always hungry and who have the same wracking cough! I have always felt a real sense of community when I am there.

Because of these positive experiences, I was excited when the USACFA board decided to pursue the goal of planning regional conferences. Not only would our conferences be different in that they were geared toward adult issues, but they would also afford people who could not travel long distances the opportunity for support and fellowship. I relished the thought of meeting new people from across the country and seeing the looks on the faces of those who experienced their first conference.
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