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Breathing Room
facilitates candid and open communication between adults with Cystic Fibrosis, supports the development of a community of adults with CF and provides education and insight for families, caregivers, and medical professionals who impact our lives.

A Dream Come True Continued

My wonderful wife, JeNiene, of 12 years, was at my side the entire time that I was hospitalized for my transplant, which in all was about 7 months. She learned the entire process of doing IV therapy hookup when I was too tired or unable to on my own. We managed about 33 drugs a day around the clock including T.P.N. for eating, due to the fistulas. In June of 2004 my wife became ill with pancreatic cancer and we were told that she needed to have a very large and invasive surgery to deal with the cancer. After the surgery we would need to do chemotherapy and radiation as well if we were to have a good outcome. At the time I was also having a lot of issues as I was on Iv antibiotic therapy everyday at the hospital, where we live in Hood River, OR.

My wife and I drove to The Dalles for her radiation and then we drove back to Hood River for her chemo drugs, while I sat next to her and had IV antibiotics for my chest infections. After a period of time on the chemo my wife started not doing well and about 3 weeks later she passed away from her cancer. While I have always lived a very positive “no give in” life style I did not see her illness progressing until the last 2 days of her life. So I was very displaced in my Feelings about where I was mentally after her passing.


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