Breathing Room: The Art of Living with Cystic Fibrosis

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Breathing Room has lots in store for the year. If you would like to share your personal stories, news items or poetry with us, please contact: us at: info at thebreathingroom.org.

Stories, Poems and opinions of participants are their own, and not necessarily those of the Breathing Room organization.

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Breathing Room
facilitates candid and open communication between adults with Cystic Fibrosis, supports the development of a community of adults with CF and provides education and insight for families, caregivers, and medical professionals who impact our lives.

Stories
We asked adults with Cystic Fibrosis to tell their stories. Soon we'll ask you to tell yours.

My Spiritual Journey with CF Isa Stenzel I am grateful for how my spiritual life has blossomed by CF and I look forward to more learning.
Live Your Destiny Perspective Robin Modlin As caregivers, whether parents, grandparents, friends or medical professionals we are all forever affected by our experience of CF. It makes us confront what is important in our lives and gives honor to the hard times associated with living with a chronic disease. Our loved ones with CF become our heroes and models for living a full and rich inner life.
My Faith Kathy Schaal I never let CF ruin what I am looking so forward to, I know CF is temporary and definitely realize it's NOT Jehovah's doing
Not So Funny When It Happened Marque Glisson It somehow gave me more confidence to talk to more people than usual - especially the girls!!
I Remember Well Catharine Martinet Luckily, I met one of the friendliestpeople in the world a short while later and she made me feel completely atease.
breathe...at Root Division Michelle Compton thanks to everyone who visited for making this such a successful exhibit - here are a few photos from the gallery
Images of Sickness Laura S In that brief moment, I had a sudden understanding of my past 39 years. I saw myself through my mother’s eyes
The Line Kayla Small At that first sound of hand against wood, I could see where things had changed. I could draw the line. And I was jealous.
Scene Michelle Compton I want to cry. I want to be consoled. I want the tears dried from my eyes and it all to be made better.
A Sense of Service Michelle Compton When we spoke that day, he kept talking about "a sense of service" - and feeling the desire, even the need, to give back (in our case) to the cf community.
Facing the Limit Ana Stenzel Am I still aware that I face a limited life expectancy? Certainly! But I still try not to pay too much attention to the statistics, but rather focus on taking care of my health and adopting the mantra, “Today, I’m okay.”
CF Reading list Michelle Compton Some books for the journey
A Dear Jen Letter Jerry Simpson It has almost been a year since you made your exit and things have not been the same.
Breathing Room Adina Freidan The story that inspired The Breathing Room's name, originally posted on the cystic-l email list in 1998, talks about having a private place to celebrate life in a personal way. With an introduction by Michelle Compton.
Call For Art 2004 Michelle Compton Call For Art Was a Huge Success! Please join us for this virtual tour of the art installation
Perspective - Pill Stephen Boyer In some ways that is a tall order when creating an image of somebody sticking their tongue out.
A Thousand Cranes Perspective Robin Modlin Seeing the strength in Hatsuko as a mother supporting her twin daughters to become independent adults has been so inspiring.
Scarred for Life, a Perspective Dolores Creed If I had it all to do again, I’d squander the love.
A Place Where They are Still Alive Joe Lindic I was even concerned about sharing that very sacred part of my life
Virtual Connections Michelle Compton I think I’m closer to my CF community now, with the internet, than I was before at any other time in my life
CFIQ Quiz Michelle Compton What's your CFIQ?
Off the Grid Shanna Carlile A little piece of heaven we call Woodlum Mountain.
Spirit Medicine: Road Trip! Lisa McDonough The Breathing Room is proud to include "Spirit Medicine" - a regular column featured in the CF Roundtable newsletter from USACFA (United States Adult Cystic Fibrosis Association, Inc). This month's column, the last by Lisa Donough, reflects on the power of a change of place.
She Isn't Sick Anymore Tiffany Angelo To want her back is just being selfish. I hope she’s running and taking deep, deep, breaths. I know she’s better now. I just miss her smile.
The Guilt I Feel Regina Grizzle I do not understand why I haven't had it worse.
My Three Teachers Walter M. Robinson, MD One of the most important lessons I learned during my medical training was to remember the difference between disease and illness.
Melissa's Story Melissa Reta When all of my friends were going to college, dating, going to bars, getting things in order to live the rest of their lives, I was writing down where I wanted to be buried, and what I wanted to wear in the casket
Take a walk, buy a pin Michelle Compton Extra moolah in your pocket? Double it's worth - get cool stuff, donate to cool causes!
Call For Art Catharine Martinet Are you an artist? Then we are looking for you!
CF Awareness Crossword Michelle Compton Have some fun and test your knowledge, all in the name of CF Awareness Month
Dia De Los Muertos Michelle Compton It is a time when Mexican families remember their dead, and the continuity of life.
Submission Guidelines Michelle Compton We want to hear from you! Our goal is to provide a safe place for people to communicate via words and images
A Dream Come True Aaron Moore Onething that can’t seem to be beat’in is the mental effect and relaxation that our minds find in our best friends - “JACK’ the family dog, or my best friend, El Rojo Grande.
Living With CF Lauren Beyenhof Throughout everything we have faced, we have learned that we don't need to be afraid of CF.
Art Application Michelle Compton CFRI and Breathing Room are sponsoring a community-based art exhibit at CFRI’s 2004 conference.
CFIQ Answers Michelle Compton So, how did you do?
Bev Johnson died yesterday Bob Wright How do you deal with sadness and grief?