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Stories, Poems
and opinions of participants are their own, and not necessarily
those of the Breathing Room organization.
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Breathing Room facilitates candid and open
communication between adults with Cystic Fibrosis,
supports the development of a community of adults with CF
and provides education and insight for families, caregivers,
and medical professionals who impact our lives.
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Standing in the crossroads
Standing in the crossroads
Amidst two paths of life
The life she was given
And the life she wishes she could have
She looks so “normal” to everyone
Yet looks can be deceiving
The CF lurks like a shadow across a wall
Always following
She can’t figure out where she belongs
Too sick to be healthy
Yet too healthy to be sick
What some might call a blessing
She calls her everlasting burden
One path leads her to her bond with her CF family
The other to her dream of acting normal and denouncing her disease
She doesn’t know which way to go
The CF is a part of her
It makes her who she is
Even within the depths of her mild case
She knows she is the black sheep
And doesn’t know which path to take
Her fear of being the sole survivor of her terrible disease
Pushes her toward taking the “healthy” path
But to deny who she is and all she has become because of her CF
Pulls her back into reality
She is standing in the crossroads
Amidst the two paths of her life
She realizes she is stuck between both worlds
As an outcast
Neither fitting one or the other
Her body belongs to one path
Her spirit the other
She realizes she will never really know which path is right for her
Her heart only tells her one thing
Her spirit will last much longer than her body ever could.
By Jessica Miller
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