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Breathing Room
facilitates candid and open communication between adults with Cystic Fibrosis, supports the development of a community of adults with CF and provides education and insight for families, caregivers, and medical professionals who impact our lives.

Blind to a Lifetime of Colors
The dead and the dying cry out as bodies of the healthy are poisoned by their minds;
starving for the joys of life, Blind to a lifetime of colours.

The hope that has left our bodies cannot find a home in hearts so hard and empty.
And hope too, now wanders around;
aimless.

As we take death by the horns and struggle to the last breath,
we've lost the chance to wrestle life; to spit on our hand
and to fling ourselves into a match for freedom and enjoyment.

So now I grieve for the healthy who stand to the side
and complain of the rules, or yell at the ref.
Bodies poisoned by the mind, never having lived and never having noticed
until the fight with death.

I cryout and point to the trees and rivers,
to the God who fashioned them; to friends and to ingenuity,
and thrill at how infinitely rich we might be.

But, my cries are unheard;
drowned out by a symphony of anger and busyness.

And so my heart mourns
torn by the waste of lives; the loss of my own.

By J. McLeish

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