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Breathing Room
facilitates candid and open
communication between adults with Cystic Fibrosis,
supports the development of a community of adults with CF
and provides education and insight for families, caregivers,
and medical professionals who impact our lives.
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Tragic Magic
I'm in a deep dark hole
A long way down
I'm trying not to fall
And trying not to drown
The weather is eroding
All the moments of any bliss
And I'm trying not to think
Of all the moments I miss
There's some people that are close
Who keep shoveling to steady
Yet others who stay stagnant
Not realising to be ready
Nutrition trickles through
When an appetite has a will
Supplements are for backup
And it's all another big pill
To breathe alone a chore
So much polluted air
Sydney is where I wait
It's so bloody unfair
To justify yourself an indignity
Groveling and becoming so selfish
When all of your life your focus
Was concentrating on being selfless
This is not who I am
The real me that's inside
I've always been just me
The other part I hide
One day I hope to rise
From the pain that's dug this hole
I plan to be just me again
Take back myself that this time stole
I won't need to keep hiding
I won't have any choice
But with my new lungs and health
I'm sure I'll utilize my voice
After the transplant
I hope to one day marry
The wonderful man with lead shovel
He who holds me close ~ Garry
As I lie here waiting
For that magic beep or ring
I remain hopeful
For the joy to my life it will bring
The hard fact is and is for many
That I am waiting for another life to end
This person could be anyone compatible
Tragic as it is, even a friend
By Fran Wright
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