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The Book is Coming!



Breathing Room has lots in store for the year. If you would like to share your personal stories, news items or poetry with us, please contact: us at: info at thebreathingroom.org.

Stories, Poems and opinions of participants are their own, and not necessarily those of the Breathing Room organization.


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Breathing Room
facilitates candid and open communication between adults with Cystic Fibrosis, supports the development of a community of adults with CF and provides education and insight for families, caregivers, and medical professionals who impact our lives.

Poetry
Poems by adults living with Cystic Fibrosis and people affected by Cystic Fibrosis. "Summus Quod Summus - We are What We are"

  CF is a Game
Ashley Johnston
"...Living to fight, Instead of fighting to live...."
My Special Mom
Paige Steidling
"...All in one breath.
A sort of breath that is different from yours.
She works for the air
That she breathes every day
..."
 
  If They Could Only See You
Alisa Evans
"...If they could only see you laughing, They would see the joy you spread from afar..."
Mental Travels
Isa Stenzel
"...My reality and fantasy are blended...."
 
  Fear
Laura S
"...It is a screen that hangs around me
Before me
Between me and the rest of it...."
Motivation
Ana Stenzel
"...I have an itch to see, to do, to be..."
 
  Blind to a Lifetime of Colors
J. McLeish
"...drowned out by a symphony of anger and busyness..."
Sad Poem
Allan Glenn
"...To live a lifetime every day,
To have and hold,
To treasure every single ray
Of sunshine, gold...

..."
 
  Faith - From Amen to Zen
Nahara Mau
"...Amen
Appreciate all
..."
Almost
Isa Stenzel
"...I could almost say if I have more loss I'd be okay..."
 
  for Natalie - How to be Strong?
Rochelle Prestwidge
"...Thank you for the privilege it was nursing you...."
In the Shadow of my Thoughts
Ana Stenzel
"...As the cycle of life rolls on..."
 
  Sorrow and Joy
Regina Grizzle
"...Without the bad
The good's not known..."
Nightlife
Jennifer Simpson
"......I want to live
I want to see...
..."
 
  No Place To Hide
Bob Wright
"...How hard this life becomes when I
Just need a place to run and hide.
..."
CF
Shawna Jacques
"...I want to know I want to understand..."
 
  Dear God
Janice Bevilacqua
"...You asphyxiate my creed..."
Bereavement
Catharine Martinet
"...a salve to help mend the gash of deprivation..."
 
  Arrival (Part I)
Michelle Compton
"...my ephemeral safety net..."
Memorial (Part II)
Michelle Compton
"...a current of lights..."
 
  Acceptance (Part III)
Michelle Compton
"...the warm liquid..."
Moonsong
Michelle Compton
"...the piercing sting of night..."
 
  Blur
HCl (Holly Loughlin)
"...not earned my health, but fought it..."
Dragonfly Pond
Michelle Compton
"...amidst the reeds and velvet-topped cattails..."
 
  Discovering Ross
Michelle Compton
"... the soulmate never met..."
Half atheist handwritten
Ross Moran
"...your imperfect eyeball of bluegreen counterproduction..."
 
  Nocturne
Catharine Martinet
"...reveal and see this nocturnal, elusive beauty..."
Open the Window
Michelle Compton
"...Come in, the window is unlocked..."
 
  Tired was there again
J. McLeish
"...he was bold enough to swing on the monkey bars..."
Pressure
Kimberly Myers
"...scream, punch, hit and yell..."
 
  The Warrior
J. McLeish
"...in his dreams he always sleeps on his bed..."
Tragic Magic
Fran Wright
"...The weather is eroding All the moments of any bliss..."
 
  Happy
Michelle Compton
"...how can you ask such a question of me?..."
Love
Ross Moran
"...We have tasted each other..."
 
  Echo's Naivete
Catharine Martinet
"...A lyre, existing solely for his fingers' adoration..."
Puppeteer
Ross Moran
"...every nuance... memory... thought..."
 
  You and Art
William Stafford
"...later, you find your way by touch
where moss redeems the stone;..."
Standing in the crossroads
Jessica Miller
"...She realizes she is stuck between both worlds
As an outcast
Neither fitting one or the other
..."
 
  Another Reminder of CF
James Binegar
"...Madness often wins out when strengths of my past seem out of reach ..."
CF is a Cruel Thief
James Binegar
"...I wish for emptiness
airways free of decay and obstruction
instead I learn to accept the thief that is CF
..."
 
  remembering ross
Mattie Moran
"...Today is 7 years since you left, finishing your 3rd set of 7..."

 




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