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Breathing Room has lots in store
for the year. If you would like to share your personal
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us at: info at thebreathingroom.org.
Stories, Poems
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Please visit
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Breathing Room
facilitates candid and open
communication between adults with Cystic Fibrosis,
supports the development of a community of adults with CF
and provides education and insight for families, caregivers,
and medical professionals who impact our lives.
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April 2005
Dear Cystic Fibrosis Teens, Adults and Parents,
It’s time to connect with other CF teens, adults and parents at CFRI’s Teen and Adult Day Retreat. Join us! We’ve got it all! We have created a safe place to get away from your routine and learn from other teens and adults with CF! This year’s theme is “My Big Fat Greek Retreat” so get ready for fun-filled toga parties, mythology and Olympic-themed activities.
We kick-off the retreat Sunday evening, August 7, 2005 and finish up Friday afternoon, August 12, 2005.
The retreat will be held at the Vallombrosa Conference Center in Menlo Park, California, just minutes from Stanford Hospital. The enclosed flyer will provide you directions and other pertinent information on the Retreat. While we would love to have you there the whole time, come for as long as you can. CFRI is sponsoring the Day program only. (Booking of overnight accommodations at Vallombrosa Conference Center or at local hotels will be the responsibility of Retreat attendees). Attendees must have a connection to CF, or a sponsor and/or invitation.
We are planning exercise, and education and support group sessions. Parents, siblings over the age of 15 and guardians can choose to relax or join us in these activities.
Space is available for all.
Applications will be processed on a first come, first served basis
with preference given to teens, 15 and up & adults with CF.
Application packets with medical release forms, guidelines and sponsorship forms are available and can be e-mailed, faxed or mailed to you. You can also find the application packet online at www.cfri.org. Please call (650) 404-9445, fax (650) 404-9981 or e-mail (progmgr@cfri.org) us at CFRI with your request and a packet will be mailed to your attention.
CFRI must receive your completed application and fees by July 22, 2005.
People with CF: Please pay special attention to cross infection policies and sputum culture requirements.
A list of hotels and accommodations in the local vicinity are available at your request.
The cost of this year’s Day Retreat is just $65 per person for the entire week.
BRING A NEW CF FRIEND AND PAY ONLY $50 EACH!
We encourage you to collect sponsor donations to help fund raise for the Day Retreat. Scholarships are available. No one will be turned away on the basis of money.
If you have questions, feel free to get in touch.
Ana Stenzel, Retreat Chair
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