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Breathing Room
facilitates candid and open communication between adults with Cystic Fibrosis, supports the development of a community of adults with CF and provides education and insight for families, caregivers, and medical professionals who impact our lives.

Michelle Compton speaks at USACFA Conference
By Margaret Myers

The Breathing Room's founder, Michelle Compton, gave a presentation on her transplant to this year's USACFA Conference before lunch, when the whole group had been sitting for hours without a break. But no one even stirred during the presentation. Michelle covered the full range of everything that transplant really means, including her experiences in the last year before her transplant in struggling to accept that she would not likely live to see Christmas.

But it was also filled with stories, like the decision that she and her mother should probably not ride in the same car with her father to the hospital for the second call, given how he had driven from the racetrack for the trial run several months earlier!

She also included at the end a picture of her 14 year old girl who was her donor. I think that the importance of this was stunning, as no one talking about transplants really talked about their donor. And this, I think, was a stunning end to the presentation that really spoke to the other half of the transplant equation. Every member of the audience was moved. To me, it made the story of transplants much more complete.

It seemed to me that Michelle covered the full range of everything that happened around transplants, the transition to making the decision, the fear, the wait, both funny and terrible things that happened along the way, the surprise of waking up alive, the joy of being able to do things she never assumed she would be able to do, and the sadness of feeling deeply the price her donor paid.




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