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to donate to Breathing Room
Breathing Room has lots in store
for the year. If you would like to share your personal
stories, news items or poetry with us, please contact:
us at: info at thebreathingroom.org.
Stories, Poems
and opinions of participants are their own, and not necessarily
those of the Breathing Room organization.
Please visit
cfmessageboard.com to connect with members of the CF
community online.
Breathing Room
facilitates candid and open
communication between adults with Cystic Fibrosis,
supports the development of a community of adults with CF
and provides education and insight for families, caregivers,
and medical professionals who impact our lives.
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The Gift of Life
Continued
Waiting, Watching, Helping, Hoping – The Caregivers
To get a person with CF to make it to transplant and through to the other side takes a lot of help. And profound commitment. It takes a team. The “team” is almost always family.
Whether it is a parent, a spouse, a friend – it takes special people to provide the necessary support and care. It takes a great deal of time and energy and emotional stamina.
One person with CF that we know has said that, having been in a caregiver role even to small degree taught him that it is much harder to be the caregiver than to be the person with CF.
Whether that is actually true or not, caregivers need information and support. And it helps to know that others have managed to live through the process of waiting with someone who is waiting for transplant.
Here are three friends of The Breathing Room who have shared their stories, hoping to help others who may face the same challenge. And the terrible uncertainty of the outcome of the wait.
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