Through the Looking Glass
Images of Adults with Cystic Fibrosis

This collection created by adults with CF is unique in that it conveys the personal feelings of CF adults living with this chronic illness, rather than portraying an outsider's idea of living life with a chronic illness. If some of these images bother you, or impact you, they should. "Through the Looking Glass" is an uncompromising and unflinching statement about heavy emotional issues. If these images bring you hope or inspiration, we are glad - for the experience of life with Cystic Fibrosis is as unique as the indivduals who are born with this illness, and it brings a multitude of emotions into one's life. The Breathing Room hopes, above all, that these images affect you, and that you will remember them and find use for their messages in your own life.

Select any of the images to begin your tour.



Hand in Hand "Because in the long journey
It's a small anecdote
But our lives are our stories
CF is the sidenote"
See Me "Breathe in
Breathe out
Hold on, live on
Balance

"
Life-Mast "Here:
penetrated by cystic fibrosis,
mummified in skin,
wrapped up by bones,
knotted in place with muscles,
tightly tied,
all the alveoli
"
A Day in the Life ""1,2,3,4" ... the band comes to life. I hear the familiar 'clicka-clicka BOOM click' from the drums accompanied by the steady pulse of the bass. The piano kicks in with a percussive carpet of chords. "
Howl at the Moon "twist...twist...twist"
Augies Clinic "She has her own methods
for counteracting bad days,
those of shortness of breath,
fatigue and no appetite.
"
Going Through Hoops "We may risk our lives on the dotted line."
Gratitude "...and had part of their lung removed"
Vrksasana "Magnificent tree reaching upward toward the sky"
Together We Stand "With the help of the thorn, the rose can survive"
My Extraordinary Friend "I never believed I would find a friend like you,
But without you in my life,
I don’t know where I would be today."
Never Say Never "I feel lucky to have found my mate It was difficult but he found me It never would have happened if Our dogs had not frolicked together in the dog run "
Littlest Angel "This angel is helping me to breathe a new life
One where I can laugh without coughing
"
Ruminations of a Bleeder "How much is too much? Is this a lot?"
Lucky 7 "The seven of us make a promise to each other And to the eight saints I'll stay in the game if you stay in the game. Please."
Acceptance "Solace puts her arm around me"
Walk Away "sung along with my favorite songs, and danced with my girlfriends"
Hidden Agenda "Me discovering the giant tailpipes in the sky,
spewing coal ash in my air so we can feel cozy indoors.
My audience can't see my core motivation,"
Pill "You dirty mind, my tongue is dirtier"
Rhythm "standing in the light"
Tachypnea "My hunger for sustenance will match your voracious appetite."
Womb "You took from me my options for A normal life, a natural family;"
Crossroads "She realizes she will never really know which path is right for her Her heart only tells her one thing Her spirit will last much longer than her body ever could. "
Surrounded by Angels "My Angels have had a full-time job watching over me and protecting me."
Symbiosis "we fight together"
Needles "Strong enough to look pain in the face and smile"
Therapy "A synchronicity of beating arms"
Bullshitting "Hey, what’s the deal with your fingers?

"
Rosebud "sixty-five spiraled wings"
Aum "sum of the elements, A U M"
Faith "Promise of a new heavens and new earth"
Surf and Air "Water rushing upward between my fingers"
Hands "Hands bind Like sunshine."
Miranda "independence and laughter"
Picnic "One, two or three heaping teaspoonfuls of sea salt?"
Bathe Me "elegance, luxury, perfection"
Road Couch "I refer to my bike as my “road couch”"
For my Wife "Morning Comes... My eyes open"
Rooftop "Missing yet another friend, who didn't make it through."
Scarred for Life "Acceptance has settled, my world is all brand new"
The Harlequin Wave of Pleasure and Pain "Nurse the pain with cool fresh liquid"
Defiance "This cord that binds me also frees me"
Terra Incognita "Pushing forward;
No guide to lead the way
Excited, yet Scary
The world is brand new
"

 




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