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Breathing Room has lots in store
for the year. If you would like to share your personal
stories, news items or poetry with us, please contact:
us at: info at thebreathingroom.org.
Stories, Poems
and opinions of participants are their own, and not necessarily
those of the Breathing Room organization.
Please visit
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Breathing Room facilitates candid and open
communication between adults with Cystic Fibrosis,
supports the development of a community of adults with CF
and provides education and insight for families, caregivers,
and medical professionals who impact our lives.
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Margaret Delano
Dr. "Meg" as she is fondly known, is both a professional and personal member of the CF community. During her medical career, she has been director of the Cystic Fibrosis Center at Kaiser Hospital, cared for CF patients at the Palo Alto Medical Foundation and Lucille Packard Children’s Hospital, and, for fifteen years, donated her time as the camp doctor for the CFRI CF summer camp. She has also served on the research advisory board of CFRI, sharing valuable insight and knowledge of proposed research projects.
Her experience as the CF summer camp doctor provided the unique opportunity to observe the magic of "community" as campers and counselors created bonds of hope and love, producing the emotional support that sharing this disease can bring. Meg’s awareness of the vital need for support and friendship within the CF community led her to participate in "Caregiver Stories". Envisioning her image, Meg had the chance to reflect on this part of her life and to share some of the memories she holds deeply in her heart.
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