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Breathing Room has lots in store
for the year. If you would like to share your personal
stories, news items or poetry with us, please contact:
us at: info at thebreathingroom.org.
Stories, Poems
and opinions of participants are their own, and not necessarily
those of the Breathing Room organization.
Please visit
cfmessageboard.com to connect with members of the CF
community online.
Breathing Room
facilitates candid and open
communication between adults with Cystic Fibrosis,
supports the development of a community of adults with CF
and provides education and insight for families, caregivers,
and medical professionals who impact our lives.
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Contributors
Learn more about the individuals who share their pictures and words throughout The Breathing Room.
John Bartelt
Born and raised overseas, Dr. John Bartelt considers himself a globalist. He holds degrees in Philosophy, Criminal Justice, Counseling Psychology, and Human Behavior, and has taught and counseled in Elementary,...
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James Binegar
CF has tried to beat me, but I still live on. When medicine fails... the spirit prevails. An Artist, Graphic designer, forward thinker, altruistic personality who serves as an advocate...
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K. Bischoff-Howell
Because her parents divorced when she was five years old, Katrina grew up in two different towns, Escondido and Carlsbad, in Southern California, and was diagnosed with CF at age...
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Stephen Boyer
Photography has been an integral part of Stephen's life for 23 years. "I bought my first camera at age 12 using funds earned shooting black and white portraits of prizewinning...
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Shanna Carlile
Shanna Carlile is 28, and lives "off the grid" in Northern California. She has a daughter,and a husband who live with her in their cabin in the woods, and are...
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Alejandra Chaverri
Born in Costa Rica, photography has always been Alejandra’s avenue for journaling and maintaining contact with her family. Although trained in Food Science, she has always had an interest...
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Michelle Compton
Michelle Compton was born in 1967 and diagnosed with CF at age 13, in 1980. After her disease seriously progressed in her 20s, she was listed for a double-lung transplant....
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Margaret Delano
Dr. "Meg" as she is fondly known, is both a professional and personal member of the CF community. During her medical career, she has been director of the Cystic Fibrosis...
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Anthony Diprofio
Cystic Fibrosis nearly took Anthony's life two years ago at the age of 31. "Most of life has been fairly normal," he says. "I was very active in sports and...
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Alisa Evans
Alisa Evans is a mom, with one adult son with CF. Alisa is a school teacher (elementary) and very active in her church. For many years, Elisa was a cornerstone...
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Todd G
From a farm town in the Portland area, Todd grew up attending the CF camps in Oregon and being profoundly effected by the examples of strong CF adults he repeatedly...
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Allan Glenn
Richard Allan Glenn is a poet, avid reader, writer and webmaster living in Carrboro, North Carolina. He has Cystic Fibrosis, and needs a lung transplant to survive, one that Medicaid...
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Marque Glisson
single male (Never married) 42 yrs old.
Grew up in San Francisco Moved to Pacifica in the 70's. Diagnosed with CF at the age of twelve...
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Regina Grizzle
Regina has celebrated her 32nd birthday in 2003 (yahoo! - RG) She was diagnosed at 6 months and currently works as a secretary. In her spare time she enjoys," singing,...
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Phillip Howell
Born in 1957 and raised around sailing boats, Phil currently lives with his wife Katrina, in Carlsbad, California. Katrina also has CF, and the couple has been married since 1994....
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Shawna Jacques
Shawna Kathleen Jacques is the girlfriend of Jereme, a person with cf. Her dad is a pediatric respitory therapist and mom is a neonatal nurse practitioner. Shawna has a younger...
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Ashley Johnston
...
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Joe Lindic
Born in the eastern suburbs of Cleveland and diagnosed with CF at age 10, Joe reports that he lived through age 20 in denial of CF, refusing to take care...
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Catharine Martinet
Catharine Martinet was diagnosed with CF at the age of 21. She spends a great deal of her time working to stay well, doting on her dog, Augie, and spending...
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Nahara Mau
Nahara was born and raised in Columbus, Ohio in 1957. After completing her Bachelor of Science in Industrial Design at Ohio State University, she moved to San Francisco in 1980....
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Lisa McDonough
The Breathing Room is very saddened to have to report that Lisa McDonough died on March 16, 2001. She was at Shands hospital awaiting a bilateral lung transplant. Lisa suffered...
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Robin Modlin
Robin Modlin became the Art Director for Caregiver Stories in 2002. She has been a long time volunteer in the cystic fibrosis community since the diagnosis of her daughter, Anna...
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David Myers
David Myers is a partner in the advertising firm, Glassoff-Myers. He is also an award-winning playwright. His daughter, Becky, who is studying in a doctoral program for biomedical research at...
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Margaret Myers
Margaret Myers is an amateur photographer and has volunteered for CFRI’s video education program. She is co-founder of Breathing Room, and serves on its executive committee. She is a vice-president...
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Scott Petersen
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