Caregiver Stories
Images of Caregivers

There are people who do not have Cystic Fibrosis, but are nevertheless directly and profoundly impacted by it.

During the years of exhibiting Through the Looking Glass: Images of Adults with Cystic Fibrosis many of our audience members expressed their desire to have a similar place to voice their feelings about their experiences as parents, friends, siblings and medical caregivers of adults with CF.

We are excited to be starting just this project. Caregivers in the CF community bring new perspective to living with Cystic Fibrosis, and The Breathing Room is creating a space for them to share their voices – their hopes, their fears, themselves.

Please join us as those who provide support share their own experiences and, if you are ready to share, please consider becoming part of this new project. We begin with one image and one journey and hope others will join us.


Select any of the images to begin your tour.



Gifts of the Journey "Gifts of joy and friendship, of wisdom and care"
Live Your Destiny "Today is glorious, celebrate! It may not last, don’t hesitate "
Grandma's Brag Book "His freckled face, a smile we live for; loving, hopeful, his."
Through My Eyes "Touched by my hands
Nurtured by my words
"
Presence "Embers of the heart in loving unison
Hovering over flickering votive candles
Representing angels unaware "
A Needy Girl "These are times to celebrate
The love we share for life and each other."
Write Some Words "Write some words, you say When wrenching grief consumes our day"
A Thousand Cranes "At the other side of the shore a thousand colorful cranes flew to me
Prayers for their survival from all over the world.
"
Ghosts "Releasing Santos’ memory Into the trees."
How "To honor and pay tribute to the life of a lost love"
For My Granddaughter "Your sparkling self dances into my heart with love"
Fight "Her prize meant more to her than a title
A ranking
Or a medal
Her prize was one extra day of her life.

"
Welcome to my Garden "May it forever be summer in this garden"
My Mom and Me "I had to baby-sit Mommy’s little bear, Oats"

 




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