Breathing Room: The Art of Living with Cystic Fibrosis

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The Book is Coming!

Breathing Room has lots in store for the year. If you would like to share your personal stories, news items or poetry with us, please contact: us at: info at thebreathingroom.org.

Stories, Poems and opinions of participants are their own, and not necessarily those of the Breathing Room organization.

Please visit cfmessageboard.com to connect with members of the CF community online.

Breathing Room
facilitates candid and open communication between adults with Cystic Fibrosis, supports the development of a community of adults with CF and provides education and insight for families, caregivers, and medical professionals who impact our lives.

Friends

We all can use friends, that's a given. But for those of us living with chronic illness, friends can often be a lifeline. But, friends who share having CF can bring with it risk as well as reward; it's a very choppy sea to manage, metaphorically. On one hand, there is potential cross-infection, and on the other is empathetic support. What do you think about this? Where do you come out on the debate?

Through the Looking Glass

An ongoing multimedia project showcasing the emotional journey traveled by adults living with this genetic disease.
Image index
Featured Image Hand in Hand
"Because in the long journey
It's a small anecdote
But our lives are our stories
CF is the sidenote"

Featured story
Looking Back
by Diana Compton
Creating our newest project, the Breathing Room book, has given us the opportunity to reflect on the value that “Through the Looking Glass – Images of Adults with Cystic Fibrosis” has brought to the cystic fibrosis community and the impact taking part in the project has had on participants. Here we share the thoughts of some of our contributors
Go there | Story index | Poetry index

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