Breathing Room: The Art of Living with Cystic Fibrosis

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The Book is Coming!

Breathing Room has lots in store for the year. If you would like to share your personal stories, news items or poetry with us, please contact: us at: info at thebreathingroom.org.

Stories, Poems and opinions of participants are their own, and not necessarily those of the Breathing Room organization.

Please visit cfmessageboard.com to connect with members of the CF community online.

Breathing Room
facilitates candid and open communication between adults with Cystic Fibrosis, supports the development of a community of adults with CF and provides education and insight for families, caregivers, and medical professionals who impact our lives.

Friends

We all can use friends, that's a given. But for those of us living with chronic illness, friends can often be a lifeline. But, friends who share having CF can bring with it risk as well as reward; it's a very choppy sea to manage, metaphorically. On one hand, there is potential cross-infection, and on the other is empathetic support. What do you think about this? Where do you come out on the debate?

Through the Looking Glass

An ongoing multimedia project showcasing the emotional journey traveled by adults living with this genetic disease.
Image index
Featured Image Surf and Air
"Water rushing upward between my fingers"

Featured story
Facing the Limit
by Ana Stenzel
Am I still aware that I face a limited life expectancy? Certainly! But I still try not to pay too much attention to the statistics, but rather focus on taking care of my health and adopting the mantra, �Today, I�m okay.�
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