Breathing Room facilitates candid and open
communication between adults with Cystic Fibrosis,
supports the development of a community of adults with CF
and provides education and insight for families, caregivers,
and medical professionals who impact our lives.
The Power of Two
After nearly 30 years, a long, hard fight against cystic fibrosis and 3 miraculous double lung transplants between them, Ana and Isa Stenzel are still alive at 41. Watch their incredible story in the acclaimed film THE POWER OF TWO premiering May 22 at
8pm ET & PT on Link TV and KCET. Watch free online starting May 22 at http://bit.ly/11QpWNF
Friends
We all can use friends, that's a given. But for those of us living with chronic illness, friends can often be a lifeline. But, friends who share having CF can bring with it risk as well as reward; it's a very choppy sea to manage, metaphorically. On one hand, there is potential cross-infection, and on the other is empathetic support. What do you think about this? Where do you come out on the debate?
Featured story Virtual Connections by Michelle Compton
I think I'm closer to my CF community now, with the internet, than I was before at any other time in my life Go there |
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